Tag Archive | physical therapy

A Month of Good Stuff

If you’ve been reading my blog for awhile, you know I often talk about the trials and frustrations of care-giving. It’s been six years since I took this position for my husband Ken who suffers from the nasty disease of MS.

Today, I’d like to talk about some successes we’ve experienced during the past month.  In fact, we’re celebrating because Ken hasn’t fallen in a month! How did this happen? Well, it was three simple changes.

He usually fell during the overnight hours trying to get to the bathroom. As you might imagine, his fall was a shock to both of us. So, I brought the mountain to Muhammad and put a portable commode beside the bed. Now all he has to do it slip out of bed, go to the bathroom, and then slip back into bed.

I also brought in a physical therapist to teach him safe ways to transfer from his wheelchair into his recliner, into bed, and into the bathroom. They also gave him a few exercises he can do sitting to help his balance issues.

The final change was adding a couple of ibuprofen to his nightly meal of pills. Because his legs and arms jerk a lot, falling asleep some nights can be challenging. The over the counter drug helps him relax and get the sleep he needs. He hasn’t experienced a day of overwhelming fatigue since.

We’re so happy such minor changes have made such a big impact on his daily life. It’s nice to see him have more good days than bad ones. Hopefully this will continue for several months before MS decides to give us a different challenge.

Change is the Only Thing in Life You Can Count On

Unlike most of the country, Southeast Wisconsin has enjoyed above average temperatures for the month of November. Even the typical gray skies and rainy weather have gone on a hiatus . . . until tonight. Believe it or not, we’re expecting four to eight inches of snow.

I bring this up because when the weather is lovely, I figure it is my responsible to take advantage of it, so I’ve been bumming around instead of plunking my butt in my chair to write. As you might have noticed, I haven’t posted any “words of wisdom” in over a week.

One thing I want to share with you is Ken hasn’t fallen in almost two weeks! It’s an occurrence to celebrate because he was falling at least twice a week. What has caused the change? I’m happy to tell you all it took was a couple of changes.

Because he typically fell during the night, I made a house rule that he was not allowed in the bathroom whenever I was sleeping. To accommodate his late-night bathroom urges, I put a commode in the bedroom. He fought me tooth and nail saying he wasn’t “comfortable” to use it. I told him he’d better get comfortable because I was tired of the firemen seeing me in my jammies in the middle of the night. After a couple of weeks, he admitted the commode was a good idea.

The other change was to have a physical therapist come into the house twice a week. She has shown him better transferring methods from his wheelchair to the bed, recliner, toilet, and car. It’s Ken’s natural tendency to make every thing as difficult as possible; I tease him he chooses the most difficult way because he’s a born engineer. It’s innate.

For over a year, the doctor has insisted Ken do thirty minutes of exercise a day. I’ve worked around him with this therapist because she has given him exercises he can do while sitting. . . of course, he puts them off. Again I need to lay down the law to get him to help himself.

I don’t know whether his reluctance to face something new is due to his fear of failure or just procrastination. Perhaps it’s a little of both. Being the exact opposite of him, I find his willingness to succumb to these little challenges frustrating.

I’ve resigned myself to the fact if I wait long enough, he’ll do what is expected. I really hate having to be a task manager — when I supervised people in corporate I usually had self-starters. I had no tolerance for people I had to micro-manage.

I also realize, though, things are different with Ken. I can’t fire him. He says I can’t lay him off either.  🙂